So, we made it home safely and I am making a little progress in recovery. I am beginning to eat again (and keep it down) and get a little stronger. I spend three days a week at the Comprehensive Cancer Center at Alta Bates while they try and treat these viruses, and the other days I get to rest at home. We're hoping these meds work and we can lessen the outpatient days.
Paul is still off work taking care of me and I think he'd love to go back to work. He has passed sainthood in my book. You say those vows, so young and carefree, not really even understanding the depth of "in sickness and in health". Well. he has now lived through "in sickness" and carried me through, too. I cannot even begin to tell you how often I cried and thought I was dying and he didn't waiver. Not once. He set alarms for all my medicine, did my laundry, helped me bathe, pushed me up and down the hill in a wheelchair at any hour, kept track of everything! I am so in awe and grateful.
Thank you so much to everyone who had me in their thoughts and prayers, sent cards, blankets, shawls. A huge thank you to my parents who did a trade with Paul for a week and vigilantly watched over me in the hospital. I have a long recovery ahead, but it's nice to start seeing some improvement.
Monday, January 28, 2019
Friday, January 18, 2019
Leaving Seattle!
Wow! Feels like a miracle, but between the doctors and Paul's persistence and many, many prayers and tears, it has been arranged for me to go home and continue treatment at home! We are packing up right now and and have a morning flight into Oakland.
Sunday, January 13, 2019
So, I am back inpatient at the UW, trying to to get rid of all theses viruses that have found me: ADN (blood, gut, and urine), RSV (pneumonia), BK Virus and pseudo graft versus host disease.
There is one very strong anti viral drug that I have started on IV Monday, Wednesdays, and Fridays, but we are deperately trying to coordinate with the Bay Area.
Paul and my parents took a week switch because everyone is so exhausted! I never ever would have imagined what these complications could add to what seemed an already sginificant time (kept hearing 30-days?)
You'll have to ask me in a year, but as of now. . .I would be perfectily happy in my old MS me.
Thank you for your kind thoughts and prayers,
There is one very strong anti viral drug that I have started on IV Monday, Wednesdays, and Fridays, but we are deperately trying to coordinate with the Bay Area.
Paul and my parents took a week switch because everyone is so exhausted! I never ever would have imagined what these complications could add to what seemed an already sginificant time (kept hearing 30-days?)
You'll have to ask me in a year, but as of now. . .I would be perfectily happy in my old MS me.
Thank you for your kind thoughts and prayers,
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