Friday, March 1, 2019

DAY +100

      DAY +100 Milestone of sorts. . .not exactly where I thought I'd be, but I can begin to see baby steps. I can make it up and down the stairs on my own. We finally got confirmation that the virus which was causing so many complications is under control. I still need the anti-viral infusions for quite some time to be safe, but we are going to try and combine the dosage to once a week. My stomach is still acting like it may have pseudo graft versus host disease so the balance of steroids and anti-virals is tricky.

     I have been completely isolated in the hospital, the house, and the car for the last 100+ days.  I have gone to the mail box once! With my new new schedule, the doctor has encouraged me to try and take some more steps so look out for the bald lady on Gold Hills Drive! I have very little strength, but he says as my platelets increase, I should start feeling stronger.

    I have been so exhausted from treatments and one-day recovery periods, I am anxious to see how my body reacts to multiple days of recovery. I think it will be good and I can begin to get out of survival mode and live again!  A little Sunshine would help too!!



   


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