Day +117

Day +117

So, there is some progress, but my stomach is still not right. We are not sure what is really causing all the pain...it could still be the pseudo graft versus host disease or it could be the side effects of the prednisone which is supposed to be treating the gvhd? Or a side effect from one of the other many prescriptions? I'm just hoping the chemo didn't do anything permanent to my gut. It is really bothersome.

In any event, once I am tapered off of the prednisone, I can stop having the anti-viral infusions every week. The plan is for two more weeks. At that point the doctor says we will consider removing the Hickman line (catheter) from my chest. That will be such a relief! People say they get used to it, but I've honestly never liked it. It has always made me nervous. It's been in since October and I am ready have it out!

As I get more energy, my mind is clearing a bit. Unfortunately, it is also making me realize how much of the last 5 months I don't recall. I look around and have all these amazing fuzzy socks, lotions, shawls, jackets, cards,  etc. . . and I can't remember who to thank or when they appeared?  So, to everyone who sent me things, please know that I love it all and appreciate it so much! 

The doctor said my labs are looking good though and I can start to get out an about a little more. So, naturally, I was excited and asked about going to a big store, like Target or Costco? He said sure as long as I wear a mask and gloves and use a ton of hand sanitizer. Seriously?! I think I'll stick with Amazon Prime for a little longer!