Phase II- Day +6

November 27, 2018 Day +6

     If I can count and Day+1 was on November 27. . .boy, a lot has happened, but I am wearing some "Smart Cooke" socks from my friend, Leah and feel pretty powerful!!  It is only 4:30am, and I am waiting to be taken down to a CT for the spine, then a Spine MRI, then an optic opthomologist, a speech consultant. I had a late night visit by a neurologist on the team, who approved tests for everything!! ' They are trying to figure out is this is some crazy infection that has gotten out of hand or if this is transplant related. I just want it all to get better..

     I'll try and update later. My parents a flying in a bit later!!

     So, my parents arrived safely and early! They came like Christmas through the hospital doors as the nurses just gave us a moment!! I took a little while to unpack what was great for Inpatient and what was better for Outpatient.

     Medically, I feel calmer. Things have only progressed in the right direction. Two doctors from the  the Neurologist office came over with five junior firm members came over. It was just like in Legally Blonde when they are picking Summer Interns. These kids were the best of the best!  But more importantly to me , they all spoke MS. They knew how it worked, what I had been through, what this nightmare of symptoms brought to mind.

     Finally I asked, so even thought none of you could have been around for the study 10 years ago, do you recall how the patients that had fevers during Neutropenic periods fared, compared to those who did not? Of course the youngest hand shot up! Yes, I knew that was my Evan who stayed up all night and read the reports and check the clinical trials file.   "Yes 'Maam," he said,  "They hit their lowest MS points ever. . .but they recovered!!" note: This is where, if I knew how, it'd be fun . to include the cutest movie clip with Reece Witherspoon and Luke Wilson.

      So, I thankfully, prayerfully, and humbly feel that is where I  am at: I will recover from this too. There could be a little viral mix going on to so I'm having another MRI tonight. . . but feeling back on the path.