November 5, 2018
Well, we made it home safely! I was a little wired on Saturday, but have now officially crashed. Just realizing all the tests, procedures, infusions, growth injections, effort building cells, harvesting cells, . . .my body is tired. And, I am still on a boatload of meds and a lot of steroids so that always makes things weird with random energy, exhaustion and insomnia!
I am so happy to have this week at home to restore a little before I gear up for Phase III. (The BIG PHASE) Paul is still home as full-time caregiver because I am on a lot of meds and there is a lot of maintenance and dressing changes at the Hickman line. He is very competent! Who knew, he had a medical side?
So, if you're wondering what I'm up to this week, you can probably bet that I am lying on the couch in my backyard, just enjoying the leaves and the sunshine!
THANK YOU SO MUCH FOR BEING WITH ME ON THIS JOURNEY!!! I came home to a perfectly clean house, healthy teenager, happy, furry pets, food in my fridge and so many warm welcomes!!
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