November 15, 2018
After a night of total insomnia from the steroids in the first days pre-meds, my day started pretty early with a round of chemo from 8-10am, another from 10am-12pm. They gave me lots of anti-nausea premeds and everything went well. I am having another cycle right now from 8pm-10 and 10-midnight. This will be the schedule for the next couple of days. (This is the E and the A in the BEAM+Atg protocol.)
To be thankful for the small things, every day I will be unplugged and disconnected from the IV pole 30 minutes. It gives me just enough time to take a nice shower and have the bandages all cleaned up.
They doctors recommend walking the halls as much as possible. Apparently, the more the patient keeps moving the quicker they recover and get out. This floor is so small though. It is the shape of a triangle, and they encourage a loop (10 laps = mile), but they are doing construction on a couple of points so you can't even loop. It is so boring just going up and down a hallway, dragging an IV pole... which brings me to the PJ situation.
I packed some cozy clothes, but kind of thought I could rely on hospital drawstring pants sometimes, even if only to avoid having to ask someone to do laundry. Well, the only pajamas they have at the hospital are size 2XL. . .seriously, for a floor of chemo patients who are rapidly losing weight? I also packed wrong because I brought shirts to cover the tubes in my chest, not thinking it through that once I was Inpatient, the tubes will be sticking out, connected to the chemo pole. So, time to shop!
Christy came to the rescue again!! First she dropped in with a bag full of gourmet goodies for me to stash in my nightstand! Then, while she was here, we went on the Gap website and found some pajama bottoms and button down shirts, appropriate to roam the halls with tubes connected to the pole. She was heading to the mall anyway, but went into the Gap and picked me up bags of stuff! I told her like three things and she texted, "Oh, I found a lot! I'll be by tomorrow to show you!" So, now she is a personal shopper, as well.
While this last dose goes in tonight, they are going to give me some sleeping pills! Lets hope they work tonight!
No comments:
Post a Comment
Comments: